so i've been waiting for months and months to see an autism specialist here in Bristol, and i finally got to see one for three sessions a few weeks back. i get called back in for a third about a week ago, only to find that they've undiagnosed me - that is to say, these specialists (and they're pretty much the experts) are sure i don't have a developmental disorder. so "what's wrong with me" has now gone from Asperger's Syndrome, to Borderline Personality Disorder, and now to nothing at all according to these ladies (apart from major depression.)
not really sure what to think of that. i trust their professional opinion, and their diagnosis was based on a pretty comprehensive test battery plus a massive arseload of history - interviewing me and my ma, pages on pages of questions about my life and my development (my ma's questionnnaire about me was 18 pages long) - so i don't think it's likely they've got it wrong. but if there's nothing wrong with me, officially, that sort of screws with my access to mental health services outside of severe depressive episodes. so i don't know if this is good or not.
anyone else run into anything like this? ever end up with a diagnosis that stuck?
so i've been waiting for months and months to see an autism specialist here in Bristol, and i finally got to see one for three sessions a few weeks back. i get called back in for a third about a week ago, only to find that they've undiagnosed me - that is to say, these specialists (and they're pretty much the experts) are sure i don't have a developmental disorder. so "what's wrong with me" has now gone from Asperger's Syndrome, to Borderline Personality Disorder, and now to nothing at all according to these ladies (apart from major depression.)
okay some new things have happened and it is time to stop neglecting the blog and actually tell people something! hooray.
first some bad news. unfortunately i wasn't able to pay the tuition fees for my place at UWE, and i can't get a loan because you can only have so many years' worth of loans. there's no exemption to the rule for health reasons, apparently. i signed the withdrawal form on Wednesday to break the contract and officially cancel my student status, so i am now without an occupation other than "itinerant loser". i'm trying to trade in the credits i earned so far for a designated degree, as crap as that is. much better than no degree. after that, i'm gonna try and get some kind of research assistant job. if anyone knows of any institutes or universities hiring, i'm all ears, could always do with some extra leads.
second, some good news. i found a partner - although you probably already know that because i said it on Twitter. his name's Paul. about a year ago i started talking with this guy about making an indie documentary. he wanted to pitch it to Channel 4 (hence my referring to him as "channel 4 guy" for about a month) but that failed miserably when C4 decided they would rather have one about a man with 20-stone testicles. but i got on ridiculously well with him, and he's really interested in the subject of transhumanism, so we didn't want to abandon the project just for lack of official backing. (when has that stopped any of us?) so it became an indie documentary, and we started talking about other shit, and when he eventually came down here to actually start filming an interview for it we sort of realised we really liked each other... things sort of developed from there without either of us really meaning for them to. the documentary is still on - we have a lot of raw footage, plus my old videos, and i'm told it now needs lots of storyboarding to work out the narrative. then editing, graphic art work (his dad is a graphic artist, luckily, and has agreed to do that for us), more editing etc. i don't know fuck all about filmmaking really.
health wise i'm alright. i started a new treatment last week - a six-week course focused on mindfulness, which is a new treatment for depression that looks promising from the evidence. it seems pretty helpful at first glance. i also had a new drug added to my regimen - aripiprazole (Abilify), which apart from making me sleepy as fuck is actually helping my mood levels i think. between all of that, Paul, and the support i've been getting from you all i'm dealing with things pretty well overall. it's nice to have someone to look out for me.
can't think of anything else that's happened right now, but i probably will sooner or later. hope you're all enjoying the run up to Christmas, sibs.
@author Lepht @hr 15:45
ugh. i'm so crap at composing blog entries these days. here is some shit that has been happening:
while the current shitty depressive episode is still ongoing, i'm getting closer to some proper treatment. a few months ago my referral to LIFT Psychology, a local mental health service, went through and i was sent on a three-day "stress and mood management" course based on introductory cognitive-behavioural therapy. it did help explain some shit about how exactly the thought patterns created by depression work, how they become cyclical or "neverending", how triggers exacerbate them, etc. the downside was that although this knowledge might be useful if i do get any one-on-one sessions with a CB therapist, it didn't do any good for actually halting or removing any of those destructive patterns. that was the first day, and the other two were about anxiety disorders and anger management, so although i was there they weren't really relevant. they're gonna call tomorrow evening for a "review" and i'm hoping they'll send me on something specific to long-term depression now. i'll take what i can get. i also discovered that this whole time i'm meant to have had weekly or fortnightly appointments with my GP specifically to discuss my mood, thoughts, antidepressants and the like, which the GP has utterly failed to even mention, so i'm gonna try and set that up even if it's just a medication review. i haven't had the dose on my escitalopram (my main antidepressant) checked or adjusted for about five years now so i'm pretty sure it needs doing.
it was my birthday on the 14th - i got all the messages people sent me & all that, so thanks for the kind words. i also checked the facebook page duneo set up so thankyou for your messages there as well. my family went to the pub carvery (yeah that's how classy we are) and i abused the fact that i've survived twenty-six years without killing myself or dying of self-induced septicaemia to persuade the chef to give me an extra Yorkshire pudding and the tasty bit off the top of the roast beef that everyone else doesn't want. HAUTE CUISINE. my brother and his partner baked a cake that was blue on the inside, with yellow and purple buttercream, covered with iced flowers and rainbows, and was filled with jelly beans in the centre. it was a badass cake. i didn't want any presents on account of the cost, but my parents bought me a weird-looking toy frog to replace the one that i'd had since i was born that got stolen from me when i was moving out of University halls one summer (i had two big market bags that contained all my possessions/clothes/books and the one with all my textbooks, my toy frog, my recent birthday presents from friends, a little book that my dad gave me when i was two or three and my completely worthless sentimental-value jewellery was the one some scumbag lifted while i was loading up the other one into a taxi.) i named it Slymer II after the first one. i'm still gutted about that fucking frog.
regarding university, i have been trying to get into Bristol University, but we got the news a week or so ago that they don't take students without maths A2 levels, which i don't have, or they would have accepted me. their advice was either to go back to sixth form (yeah, back to fucking SCHOOL) for two years to get one, or to apply to the other local university UWE (University of the West of England). having looked at both courses, i'm pretty sure the Bristol one is too theoretical for the type of research i wanna go into - plus i don't wanna go hang out with a load of sixteen-year-olds who are still in compulsory education, i don't wanna wear a school fucking uniform, and i especially don't wanna go anywhere near the town secondary school which was the place where i got so badly bullied that i don't even have proper memories of most of it. the UWE course seems much closer to what i was studying in Aberdeen. i am actually very, very bad at maths - one educational psychologist in Aberdeen thought i had dyscalculia because i can't do basic arithmetic in my head, although i'm alright with stuff like algebra - so even if i did manage to get an A at the A2 level, i don't think i would be able to handle the contents of the second and third year university courses, which you have to take at the Maths Department with the maths students. even if i did i wouldn't be able to get the sort of grades i was getting in Aberdeen. seems like there's a distinction between mathematical, theoretical computing science in some universities and applied, less academic CS in others - the only thing i'm kind of worried about is that this might make it a "lesser" degree and maybe that would affect my chances of a career. when i was applying for places on linguistics & language degrees at eighteen i was repeatedly told not to apply to UWE because of its bad academic reputation, so i was also worried about that, but it seems that was referring to the Languages department, and UWE has apparently vastly improved its rankings over the last five years or so. so, i'm now trying to find someone at UCAS to find out how to apply for this place given my rather twisted situation.
in other news, my parents have decided to use what they've saved up over the past few years and take us on a holiday. a massive ten day holiday. the kind i've never been on before. they're going to some all-inclusive place in fucking Jamaica and for some reason they actually agreed to take me with them - i've seen the brochure and it looks incredible. the pool has a bar that you swim up to and sunken seats where you drink your drink and there's a snack hut on the side that gives you hot jerk chicken. it even has a Chinese restaurant. they're going in September (so my ma will have her 50th birthday out there which is pretty bizarre to think about because there is no way my ma looks fifty years old), so hopefully if i do get into UWE it won't interfere with classes, but i suppose i can always take some class work with me. i wouldn't mind working the whole time if i could go to the pool bar for breaks. i've never done anything like it - we don't have that kind of money and they've saved for a long time i think, it's never gonna happen again, so i'm still amazed they actually let me come. (hence why i didn't want them to spend any money on my birthday.) i am gonna have to take about ten cans of factor 75, and figure out a way to get a litre of heavy opiate painkillers into the country without being arrested, but i fucking love travelling when i can & i think it's gonna be fucking great.
i have also lost half a stone since being taken off one of my antidepressants, quetiapine. if any of you have depression, or an anxiety problem or a psychosis-related condition, i'd advise thinking really carefully about your calorie intake and checking the side-effects of your medications before you start if you're offered a new one. especially that particular medicine - it does help you with mood but it's so, so bad for side effects and i've had similar experiences (though not as bad) with others. i didn't look at the info properly and so because i didn't change my diet as they increased the dose i went from a size 8, weighing eight and a half stone, to a size 12 weighing eleven. being disgusted with yourself and not being able to figure out why reducing your calorie intake isn't working like it should pretty much offsets any benefits the drug might have moodwise, and it doesn't help if you're finding it hard to do things like put on makeup, shower properly, etc because now every time you look in the mirror or down at your body you're reminded that you're repulsively overweight. i'm hoping to lose the rest of the weight over the next year.
i'm loath to say "EVERYTHING IS FINE NOW" because it's still not and every time i say that something fucking awful happens, but shit is at least going a better way than it was a few months ago. i've been able to tidy the house and make the beds more often the last couple of weeks, and also to take my dog out for a couple of walks, and today i did the house, had a shower, did my hair and paint, and took my laptop to Hawkes House (the local omni-hangout that does restaurant food and tapas and drinks and coffee, that sort of shit) with the express purpose of putting a blog entry up and starting to deal with emails. a month ago doing any one of these things would have been the max i was capable of in one day, and there were a lot of days when i couldn't do fuck all.
i'm gonna try and do this again tomorrow. i haven't replied to any emails today (i was writing this) but i did clear out all the spam and automail, so tomorrow i'm gonna try and get to the emails.
@author Lepht @hr 18:32
@author Lepht @hr 20:10
i have seen an assessment dude from the psychiatry services here recently and said dude has recommended a pretty major medication shift. the main sleep medication i have is quietiapine, or Seroquel as its brand name. it's actually an antipsychotic (i am not psychotic) so it has some pretty gnarly side effects, but it works well as a sedative and is also one of the only well-studied treatments for BPD. i was fairly certain that because of this i'd be stuck with the shit for life. it's a pain in that it fucks up your metabolism and appetite - apparently almost everyone on these drugs gains weight, which is one of the things that's been really getting to me. i track and restrict calories but the amount that i lose weight on instead of plateau has gone way down, from 1500 losing me a good amount of weight per month to still weighing the same on 1350, so it's hard to actually get the weight off.
so assessment psychiatrist dude tells me apparently there's a new drug called aripiprazole or Abilify that i'd never heard of. says you add it on to pre-existing antidepressant regimes instead of replacing them, but he reckons it can replace the quetiapine. and it doesn't cause weight gain - in fact it's apparently associated with weight loss in depressives. fucking a. i agreed, and dude wrote to my GP (who is currently in charge of my psych meds until i can see a real psychiatrist, in the predicted waiting time of six to eight months, natch) recommending a regime change. he also pointed out that tramadol is a pretty crap breakthrough pain med for someone accustomed to 100mls of bloody methadone as their everyday pain control, but didn't suggest a replacement, so i have to go inquire therein about everything. hopefully i can see the GP either tomorrow or Tuesday and start that shit ASAP, although i did find that quetiapine can fuck you up if you stop taking it suddenly. mine ran out when i forgot to request the repeat scrip once and i was throwing up everything i ate for like five or six days. i think i'll probably need to taper off of it this time.
dunno how i'll do with sleep on just melatonin, but insomniac is better than fatarse.
@author Lepht @hr 19:53
well, i guess the "letter to resuscitate dead relationship" experiment is officially a failure. i've left enough time that it's almost guaranteed Muad-Dib would've got his hands on the letter one way or another by now, even adding on time for "heartfelt" consideration of words etc. most likely hypothesis right now given all evidence: the man simply does not give a shit.
the stupidest fucking thing is that i would have dealt with it a whole fucking lot better if he'd just said when he left me, "Look, you little crippled fuck, you're a massive financial and emotional burden and I'm fucking sick of taking you to hospital when I could be out drinking and fucking that slut we don't talk about because your crying over it makes me mad. I can't be arsed supporting you while you're sick and frankly I'm bored of morphiac sex so I'm leaving your sorry arse. You'll never see me again, feel free to recycle those love letters I sent you, ta ta."
instead i wasted seven months or more waiting for him to make good on his vague talk of "still caring about me" and "not wanting to be left out of my life" etc. etc. he spent hours on the phone with me (and repeating it all to my ma when i couldn't speak anymore) promising he still wanted to be in my life, telling me he just couldn't handle a relationship right now, he just needed time, all that shit of which the implication was that he would at least be up for giving it a go in a while. he phrased everything as if he was just exhausted and needed a temporary break. in fact, this was the whole point of sending me to England for respite care - to give him, the primary support in my life, a nice long break where he didn't have to worry about me and could just get on with his job and use his free money and time to go and have fun. naturally, i did not understand any of this heap of talk to mean "Fuck you, Anonym, I'm off, you ugly little wanker." of course this was apparently exactly what it meant. had he gathered enough balls to simply tell me he'd had enough of caring for me and would never come back, i could have been recovered four or five months ago rather than still being fucked up over it now. i at least have enough pride to know i deserved the fucking truth, but it seems he was too much of a coward to even tell me long-distance. he could have emailed me, sent a letter, texted me, anything. but no, nothing, leaving me to assume he still meant his words and really would come back to try again someday. i am pretty fucking pissed that he couldn't even do me the courtesy of cutting things off for definite. he thinks it's perfectly fine to lie about the possible future so i couldn't move on and then deny all communications, leaving me without anything to analyse, without any possibility of closure, not able to mourn what was nor hope for what might still be. from here it just looks like twisting the knife, although i know it was done purely to make himself feel better.
several people have asked for powerword & IRL address on him, more for his usernames etc. on various esports and WoW. i am this close to just collating everything i know and putting it all out there. if it comes around that i hear from some acquaintance he's replaced me, i'll fucking do it.
i did something pretty stupid today. i couldn't sleep last night, even with all this in my veins, and i just kept thinking of Muad-Dib. so at about 0400 i wrote a letter to him. the handwriting was so shitty he probably won't even recognise it, on account of my hands shake at the best of times and it gets worse when i'm stressed. i'm not even sure what i said.
i guess the heart of it is that i still love him. i cannot forget that. his loss poisons me every day that i am still without him, like something inside my chest is rotting away. i find myself thinking that if i can't be by his side again, it would have been far better if i had never met him at all. i had never loved anyone before him - i told a few boys and a few girls that i did, but it was always the kind of situation where you're forced to say it back because they just did and you don't want to upset them, then you sort of come to believe that liking them is the same thing... then i ran into Muad-Dib and everything was different. i'd do anything to be back with him. it's fucked up but if he asked me to stab my dog in the heart, and then i could come back to him, i'd seriously consider it. my loyal, faithful Staffie dog, the best dog in the world, that tries to comfort me when i wake up yelling at night and licks my face if i cry, that i could take for a walk on the main roads without a lead if i wanted to because she sits down at every curb and waits for me to tell her it's okay to cross, that never disobeys a command, the best friend i have in meatspace - and i would probably murder that poor dog if it would bring back the man i loved. i'd give up decades of my lifespan. i'd let myself get sent to an asylum. anything. even after all the shit.
i don't have a clue if he would forgive me for depending on him for so long. he probably remembers months and months of him working, me doing nothing, him bailing me out each time i bought too much food and pushed my bank account into the infrared again. i was a massive drain on his finances. and because of my depression, i was close to catatonic for a lot of the time, which must have looked a hell of a lot like pure brazen laziness. like just basking in the free time, not having to work, getting while the getting was good. i will always regret that.
of course because i had been writing and thinking of him, the dreams were even worse last night. every so often i have this cruel dream that i'm with him; usually there's some surreal conflict going on, like this time he was choosing a woman to marry from a list. i screamed and begged and pleaded with him, as i've never done in waking life. "Just marry me!" i shouted. and he agreed. i was so fucking happy. just like the other times, he came back to me and took me in his arms, and i actually felt him hugging me and his hands in my hair, and everything was gonna be okay again, and then i fucking woke up and it wasn't true and once again there i was sobbing at six in the morning like a fucking fool. i still sent the letter.
all i can do now is try not to wait for any reply. i can't get my hopes up, because if i do and nothing happens, or worse, he replies and tells me he's found a real woman who's beautiful and sexy and has a nice clear sunshiny fucking mind, it will be like hearing him leave me all over again.
this has come about as a result of all the promotion of Valentine's Day, of course. i suppose all the bitterness sank into my brain until it vomited. i doubt it was a good idea to send anything - tomorrow he will in all likelihood either get drunk with his mates, all of whom i also miss, and go to a club and pull some pretty girl, or if he has already replaced me, he will be writing her a poem and giving her roses. i will be alone in the house (my parents will be having a nice dinner somewhere) with the dog. i will probably raid my dad's stash of cider, get wasted, feed cake to my favourite hen Steve McQueen (she may as well have a nice dinner too), and hopefully fall asleep without any fucking dreams.
fuck. what a pathetic screed. believe me, i would love to be able to "get over it" as common sense suggests. other forms of repair are progressing: i have been assessed by a psychiatric nurse and referred to a consultant psychiatrist who is coming to my house in a few days to see how fucked up i am; i have a stable if expensive source of medication from a prescriber who does not believe i am a lying crackhead; i have seen an orthopaedic specialist who has decided that my spine, while it is too curved, is not bad enough to qualify as "deformed" and therefore does not require surgery. i also need to thank everyone who has sent anything, be it money or food or anything else - it really, really does help, so thank you. on Valentine's Day, all of you who are happily ensconced in loving couples, maybe think about not snogging and giggling in front of your fucked up single acquaintances. throw us a fucking bone here.
my sincerest apologies if i inadvertently appeared to be a scam by not claiming funds via PayPal - i forgot you had to do that. i cannot thank you all enough for flinging a few quid this way here and there (or a whole lot of quid, as it may be) - i literally have nothing right now and it's fucking amazing to suddenly have even a little bit of funds for food and fags. i am kind of a massive burden on my parents and it sucks to live in someone's spare room and not even be able to feed yourself.
on the benefits front, i duly applied, sent lots of data and got a nice letter in the post. dear hacker, we cannot pay you benefits. it doesn't even say why - under the "why" section it just says "we cannot pay you". i don't even know if i'm eligible for some other shit, or what - the guy on the phone sure as hell didn't think i was. i guess i'm gonna have to find a way into the nearest city to get to a physical job centre or something, i dunno.
emo or not, the colder it gets, the more i just miss Muad-Dib. i'd give up anything for a chance to be back with him.
i feel pretty goddamn shitty. i'm still at my mum's - i'll be here until September 2014 at the earliest - and i'm still completely fucking broke. i have to ask my parents for food right now. some people have volunteered to help, so if you really want to, i have a paypal at email@example.com. i also have a bank account (it contains minus 2K). if anyone wants to give me 2K so the bank will stop trying to take my blood, you go right ahead, sir or madam. if you wanna throw me a few quid i will happily give you the details by email or you can text me, my phone number is a few posts down i think.
i will also accept offers of free food, random parcels, pills, your unwanted Steam items and/or oldarse games, all that shit your ex-girlfriend left at your place six months ago when she moved out, grocery vouchers pilfered from your parents, and a few people have asked if it is okay to send christmas presents, which it definitely fucking is. anything you wanna send, you can send. i am too poor to be proud, i will eat anything that doesn't contain cheese or tomatoes (they make me throw up). (well, they make me throw up more.) pizza is OK. and second-hand clothes you don't want, i seriously love those. especially men's ones, which are way more comfortable and seem to be the only way to get jeans which are not skintight or hoodies that actually keep you warm or hats that do not look fucking stupid. i am incredibly easy to please.
my mum has given the green light for sending things to this address, it is:
21 Ashgrovethe condition on that is that nobody comes to visit. i'm not exactly up for visits anyway and i think most of you are on the mainland or in the USA to boot. so knock yourselves out.
*jingles its begging hat*
unfortunately i do not currently have the space for that pony.
i guess i ought to explain what actually happened with Muad-Dib now that i can sort of talk about it. even now it still makes my hands shake to do it, though.
so ctrl-shift-h a few months and i was still living with him in a tiny one room flat in the Silver City. i haven't been well for a long time now and i wasn't doing too good then, either. i had a seizure, pain levels were getting pretty disabling, syncope and BP were bad, my head was a mess. my ma came to visit, and while she was there, she came along to one of my appointments with my consultant psychiatrist (Dr. D). Dr. D kindly listed for her all the different ways i was fucked up, and explained how this litany of insanity made me not very capable of looking after myself to a normal person's standard, and between me, my ma and Dr. D it was decided that i would come down to England over the summer for respite care. this would last a month or two, during which Muad-Dib would get a break from me and all my shit and i would go to stay in an environment that would be less isolating during the day. then i'd come back up and finish my last year of university courses starting in September. before i left, he told me to take it easy, get rest, and promised me he would be there when i got back. i packed all my shitty secondhand clothes and gear into my great big fuckoff holdall bag and lugged it to the airport and there i was.
unsurprisingly the plan went arse over tits about a week afterwards. he called me one evening, and after allowing me to flether like a fucking idiot for ten minutes about how much i missed him and how i took the dog for a walk and stupid shit like that, flatly informed me that he had been thinking and didn't want to be in a relationship with me any more. i could still live in the flat with him, he said, if i wanted to, but he was leaving the relationship.
several seconds passed while my mind tried to form an adequate expression of just how stupid it was to expect that someone you have just dumped, who still loves you, could possibly be okay with staying with you in a tiny fucking bedsit which only has one place to sleep - we would either have to carry on sharing the bed or i would have to sleep underneath it. and at some point he would meet someone else and what the fuck would happen then? "Oh," i said. he carried on talking. he was sorry, he didn't want me to take this to mean he didn't care about me, et cetera. i had stopped processing the input at the bottleneck of your life partner doesn't love you any more and simply sat there. eventually i noticed the dangerous amount of water that had fallen off my face onto the keyboard. i remember saying emotionlessly that i had to go speak with my mum now and hanging up on him.
i cried so fucking hard. it felt like my chest had been punched through and just a gaping, howling void was left. i couldn't speak. i couldn't sleep. he was everything to me and he had ripped it all away with one fucking phone call. part of me couldn't even believe that this had really happened - i kept thinking, this isn't him, and then the riposte, no, this isn't what i knew of him. i'm so easy to lie to once i trust someone that he could easily have been thinking about this for months, telling me everything was fine. i don't know any different.
a couple days later my ma called him to figure out what the fuck was going on (i was there). from this call we understood that he definitely wasn't going to change his mind any time soon. he said a lot of things: he still cared, there wasn't someone else, oh you don't want to stay in the flat?, things had "changed", and some other platitudes. i said only that i could not "still be friends", which was the truth: i refuse to put myself through the agony of watching the only man i have ever truly loved get over me, meet pretty girls while he's out drinking, bring some home, get attached, fall in love. replace me with someone he doesn't have to waste his money supporting. watch some perfectly healthy beauty with no scars become his bride. i'd rather die.
"So it's all or nothing?" he asked, sounding surprised. "Yeah," i said. "I can't just be one of your friends." i didn't know it then, but that was in all likelihood the point at which he decided on "nothing".
at the end of the call he said he needed months, maybe more, to make a decision on whether he could ever countenance repairing the bond we had and getting back together. a month in i broke, and emailed him asking for a decision now. he replied, "I'm sorry, it's a no." he added more, things to make him feel better - i "deserved someone who would look after me", he promised to keep in touch, he was sorry again and again. he wasn't sorry enough to try and repair our life together. i could come and pick up my stuff any time, he informed me. as an awful postscript to everything, when we came to pick up my things, we found a "Guide to Lovers' Massage" hidden amongst his socks which had to have been bought after he left me. i don't know if there's another because the only message i ever received from him after that was one sent to my mum, asking for some shit we'd taken to be returned. i refuse to send communications on my part because i can't face talking to him and possibly finding out that i was deceived the entire time.
i ought also to point out here that he did sleep with another woman once, owing to an agreement between us from way back when we were just fooling around together - i said he should find out what he liked, before committing to me. since i never rescinded this, he thought it was cool to bring a girl back to our house while i was visiting my dying granddad in hospice. she slept in his arms in my bed, another image i can't get out from behind my eyes at night. i forgave him. i dunno if it's her, if it's anyone. idk if he just got sick of me. his friends' girlfriends are all beautiful, as is this girl, no giant tattoos or faded man hair or fat guts or self-harm scars or fucked up old-ass gypsy clothes. i used to see them sometimes when they went out and think how fucking lucky i was that he was with me when he could have had any of those lovely women.
so that's how i lost pretty much all progress from the past two years or so. my stuff is shoved into boxes in the back of my dad's office. i'm in my parents' spare room. i still love him and there is nothing i can do with that. i have no money, no house, and i can't go back to the University until late 2014. i wish i could write something happier. sorry, sibs.
i'm sorry to give you all bad news again. Muad-Dib left me this evening. i have no more words. L
@author Lepht @hr 23:01
okay so i've seen all your comments more or less, but there's too many for me to adequately respond to right now including all the mentions and messages on Twitter, comments here on various posts, phone SMS and answerphone messages, emails etc. i haven't reaccessed the email box yet & to be honest i might just delete everything in it beyond the last month or so, so if you did send anything you desperately want me to see or you really need a reply to go ahead and resend it.
the situation is, my meat home is not faring too splendidly. a few months back my thyroid stopped working properly, and since it isn't the standard autoimmune problem (i have the problematic TSH levels but not the autoantibodies, if anyone cares) i'm not being treated for it. the GP i was seeing thought it was better to just leave it, and as you could probably have fucking guessed, that didn't turn out to be a great treatment. i'm carrying two and a half stones or so of extra weight and it's not pretty. i'm tracking calories as best i can, but on 2K/day i was still gaining and it's only stabilised on around 1500 or less now. that's fucking hard to stick to, although it helps that we're poor as fuck.
the poor as fuck is because i'm not currently getting any student allowance, on account of i've been too fucked up to do anything like either study or work. so i'm not possessed of any funds for experimentation, which is frustrating.
the rest is still there: i'm still anaemic as far as i know, my back's still fucked, i'm still taking 100mg of fucking methadone daily for it (which granted is free) and i'm still mad. officially the diagnosis is "BPD with cyclic treatment-resistant major depression and iatrogenic opiate dependence". (apparently that explains the two or three occasions on which i've heard weird songs that aren't playing in meatspace.) contrary to the general commenter opinion i am not in fact schizophrenic. i think someone made a video somewhere on YouTube or something, about how i'm a fucking nutjob and you shouldn't listen to me because i'm just telling you what the voices in my head tell me to, but alas, i've never had the sort of hallucination that tells you things. mine were only ever little odd tunes going round and round, with or without strange poetic lyrics.
as to the suggestion that maybe it's not auditory hallucinations and i'm actually a conduit for an unseen dimension of the world that most of us aren't aware of, well, that might be cooler but if it's true the hidden dimension pretty much just wants to sing songs about shadows and twiddle its thumbs. sorry.
so that's what i've been doing. absolutely bollocks all, more or less. i think if it were either purely physical problems, or just the mental stuff, i might have been able to deal with it better, but it's everything all at once. the mental capacity to deal with and ignore the pain got fouled up because of all the shit that goes on in my head, and anything in meatspace i might have turned to in order to escape or improve the psychological status goes out the window because of the pain and the loss of mobility involved, never mind the fact that going anywhere or doing anything tends to cost money. i've pretty much just been trying to sleep as much as i could, because pathetically enough, that was the only place that didn't hurt to be in. the downside of that is that in that sorry escapist state there's no room for communication, and in fact i had the general idea that it was better not to look at the email or blog and to keep the phone off because all the messages would be overwhelming. that's not strictly true but there are literally thousands of people wanting a heads up, and fifty or so who worry exceedingly within a few days of not getting one, so there is a fuckton to keep up with.
(that isn't to say that anyone trying to reach me worsened the sickness or did anything wrong, it's a flaw in my logic, so to speak, but it's so ingrained that combined with the fact that i don't like voice contact at the best of times, it just led to me totally shutting down in an attempt to escape it all.)
i think it's improving, slightly. after all i can speak now, right? i don't know. i don't wanna make any grandiose statements that it's all better. my blood family in England and my adopted big brother in Canada have been trying really hard to help, and for the first time my blood family now have all the details of my medical diagnoses. my mum came up here to see me and figure out what the fuck i was doing, then realised how fucked up i was, so with their support i'm currently planning to go down to England over the summer to maybe recuperate a little. there's animals there, dogs and little bantam chickens that sit in your hands and a cat, and there wouldn't be the same kinds of money problems, although i'd just be sponging off them which does bother me quite a lot. i also changed GPs to hopefully get a fresh look at my case and some decent treatment for the pain and thyroid problems, and i've had a formal care plan drawn up with the psychiatrist which is in draft right now. i feel like a broken cyborg that's just been discovered in the rubbish heap, dragged home and pulled up onto a bench for someone to take a look at. maybe they can fix me and get me running again, maybe i'm too damaged for that, i don't know. i've pretty much only just "woken up".
so if anyone else out there wants to help restore an obsolete piece of junk that might still have some use, i'm all ears over here on this workbench.
i welcome any kind of message from pretty much anyone who isn't trying to sell me gods or penis pills. i sometimes can't reply to everything but i'll try my damndest to read everything people send me.
email: lepht at trioptimum point com
physical address [EDIT: i have removed this since i don't live there any more]
mobile: (+44) (0)7527 428831, i'm absolutely shit on the phone and i really hate voice calls because of how awkward they make me so SMS greatly preferred, you can call me if you like but you'll likely get stuttering and monosyllables and i tend to hang up if i can hear my own voice.
IM on request: firstname.lastname@example.org, tell me if you wanna IM so i can try to remember how to work it
i have a Steam account as well but i can't remember its username right now. i'll see if i can dig it up so we can have some co op. any other things that you want me to set up or think would be useful, go ahead and suggest, i'm all for anything that helps me be less isolated and more connected with you guys.
gonna go make some spiced milk and play some Alice now. carpe corporem
urgh. idk what the fuck actually happened but i've not been able to get into any of the Google services i use at all for the last couple of weeks - SA was rejecting my password and even the one i retrieved via mobile backup, Gmail wouldn't sign in apart from a couple of times i managed to get in through a different machine, and even then it would kick me out to relog every few minutes. dunno if someone smarter and more malicious than myself was fucking with me or if the Google account just had a stroke or something, but i'm in now. i do know that just after i posted on Twatter that i'd recovered access i was booted right back out on my pasty little arse. i fucking hate access issues.
real hackers seek knowledge, kids, they don't just fucking break things and torment people. i'll probably get another OH HEY NO HARD FEELINGS HUH I WAS WONDERING IF WE COULD SLEEP TOGETHER NOW I'VE FINISHED ANNOYING YOU AND YOUR ENTIRE READERSHIP email like last time.
makes it seem a little silly to post contact details, but what the fuck, i figure they're pretty much out there already. coming right up, sapes. cc
i'm not dead. anymore. i feel like i have been. didn't move, didn't eat, didn't talk or communicate with anyone but Muad-Dib, barely even that. i couldn't remember what month or year it was or when anything was. i didn't go to the doctor or the psychiatrist except to mindlessly collect drugs. i didn't open my planner or my logs. i couldn't touch my phone. i don't even have any real memories from beyond about a fortnight ago, not since finding this place last-minute in early March and the rigmarole of getting it paid for and putting enough shit inside to make a house.
i had to stop there and go puke my guts up again. that's been happening for a while now but once again, the NHS thinks i am a skaghead and besides i already have a fuckton of antiemetics. the bowl under my bed is full of blood and all this green bitter shit i think is bile but might be stomach weeds or something since i haven't eaten the last few days. it's fucking gross, but it's better than being dead.
i also have some tramadol (legit!), which, predictably, has fucked me up. not in the good way either since i can't keep it down. i wish i had some goddamn intravenous doses. can't get the cyclizine to stay in my system long enough to take action.
veering off track again - apologies. my mind still isn't what it was yet. i'm losing the struggle to even fucking name what happened. i'd like to say depressive episode, but never in my life has it been that bad, never has my whole consciousness been reduced to catatonic coma like that. it's been so much longer than a normal episode, too; i can't really tell but i know i've been like that for months after i should have surfaced. i know i planned to die after i realised it was eating away at my mind, because i wrote it in an OO.org file i found amongst my documents about a week ago; i had the tools close at hand, but i didn't even try this time. in hindsight that's probably good, since what i built was more or less foolproof and does not allow for second chances. one breath would have deoxygenated this carcass in milliseconds and wiped me from its shell like rain off goretex. i shudder to think how close i came to this, and how close to its effect i was in life regardless.
no, i dismantled the assembly, and i must have discarded the components, because none are here and Muad-Dib would have done something memorable even to me, i think, even then, had he found them. for the first time i had the capacity to do it quickly and cleanly, and as the cliche goes, i couldn't. or must not have been able to, i've no real record of what happened. i found myself shackled to life by the simple existence of the man i love, and by weaker chains to everyone else who gives a fuck, Unqualified and my blood kin and Max and Usul and everyone else there is, all of you.
Muad-Dib said at some point that he didn't want to be what kept me there on life support. i remember saying that there wasn't a choice in it, and remembering what he had told me when he first knew: that my loss would rip his life to shreds, and he wouldn't be able to end that pain by following me. a lot of the time when your mind is crumbling like that all you can think of is the easiest of the hard ways out, deleting yourself. you forget that it would leave a wake of destruction in the lives of those you know and care about such as you can't even imagine, such as would fuck them up permanently just like you, reduce them to the same state you want to escape so badly - only without that escape, because they saw what it did and they won't spread the damage out any further. i know what it would do to Muad-Dib, the strongest person i know. i don't even want to think about the crushing blows my suicide would have dealt to my mum, my nan, my dad.
so i lived, half-dead, and after a very long time i woke up. i don't know what did it. the week before, i was prescribed an additional drug, Seroquel, although i don't seem to have taken more than three or four doses. maybe it was that. maybe it was Muad-Dib's hard work finally paying off, since he's been doing literally everything for me since i fell into catatonia. he quit his degree, took a full time job with one of the giant zaibatsu corporations that run this city, left at seven every morning to come home at five and cook something with meat and bread and try to coax me to eat it. he'd download episodes of a couple of TV programmes during the day and put me in front of them in the evening and watch them with me, he installed simple games over Steam that he couldn't really afford and set them running to try and get me to play. he did the dishes and cleaned the house and took the rubbish out, talked to my mum when she couldn't get hold of me, filled out the council tax forms and doctor's letters and sent countless emails to Prof. V trying to explain what the fuck happened. i owe him everything, again.
shit, i type too much. tl;dr then - it seems i cannot be trusted not to disappear when this channel of communication is simply me talking at you. i'm pretty sure that one of the contributing factors to what happened is that this is the first time ever that i have had absolutely no friends at all while an episode is ongoing; even the presence of B, who didn't really understand the whole depression thing and thinks suicide is an act of "ha! now they'll be fucking sorry," helped a lot more than i thought. so, i'm asking anyone who still reads this for a favour. i would like you to remind me of... well, anything. life. since my anonymity is far more cosmetic than concrete, i am going to give you every possible means to do so. i need contact from people or, it seems, i really do go insane. the details i will place in a second post for visibility.
i understand that maybe nobody except spammers will take me up on this, but the data haemorrhage is worth the risk to me. i'm fucking sorry i didn't do this before. i'm sorry i left you all. i'm sorry i didn't answer your messages. i'm sorry this has happened so many times, and that i wasn't good enough to stop it. i'm sorry i wasn't awake before. i promised you knowledge and i have not yet delivered.
it is my goddamn duty to hold up that promise as well as my life.
i got the news today that my great-grandfather, Tom Dowler, died peacefully this morning at 0920. he was very old and suffering from the advanced stages of dementia, so the family has been expecting this for a while, but i guess you can't ever prepare properly for this kind of shit.
we called him Farver - that was all we could pronounce out of "great-grandfather" as tiny kids. he and my great-grandma Doll-Doll lived very close to where i grew up, just a couple of blocks away, and they were always involved with us, always happy to see us when we came to visit. they'd break out the biscuit jar and let me eat as many ginger nuts as i could cram into my face, and they kept a stock of proper Schweppes lemonade for us. Farver would press a pound coin into our hands as kids, when it was a fuckton of money to us, and grin and tell us to go and spend it all at once. later on as i left for the University he'd give me a tenner when he saw me, even though they don't have very much money to live on. he would always bear hug me and tell me, "Stay lucky, kid. Be good."
i was lucky enough to get a proper goodbye, which was more than i managed when my gran died. lucidity was incredibly rare by last Christmas day, the last time i saw him, and i thought it had been gone completely for quite some time. for the most part, it had. he was still cheerful, and we (me, my ma and my nan) opened his presents with him in the care home and made sure his giant pillowy bed was comfy, just sort of chilling and fetching the occasional drink and talking shit with him. he was the nurses' favourite guy in the whole place. they'd just changed his bedding, given him his meds and made sure he was okay, and we'd come back in to hold his hands and make sure he fell asleep knowing there were people there with him. before he went under he looked straight at me and said, "It's okay, kid, I'm still your Farver." i gave him a hug and he fell asleep.
he was a good person who did some bad things and some really fucking good things. he fought in the Second World War, driving an amphibious tank called a duck, and helped liberate the camp at Flossenbuerg. he was also a good friend of the Kray twins. he never spoke about this - to us, he was just Farver. he loved us.
i can't say he's in a better place, but he's not suffering any longer. recquiescat in pace.
well, that was fucking terrible. ran out of time, a quarter or more of the shit i was meant to be answering got left behind. another quarter did get answered but was so messy and rushed that i seriously doubt it will get me any marks. i guess i did alright on the other half, even though it was mostly on Agent UML, which is the one tiny piece of the course i didn't fucking revise or even make notes on - but i'm not good at estimating that kind of thing, so really i have no idea whether i'll even pass or not. there were five or six drawing questions, so i fucked up my time management and wasted almost all the time i had making the fucking drawings, painstakingly, by hand since the University doesn't let computers for exams access anything other than MS Word. i have nowhere near the level of Windows Stockholm Syndrome required to be able to make legible AUML diagrams and finite state automata in Word, never mind the level it would take to want to.
(i know people are trying to be nice when they say this, but no, sib, i will not "pass with flying colours" this time. please don't say that. i'm not low-self-esteeming a perfectly good exam transcript up to shit - this really was a very bad run. they happen. also i am trying not to say stupid shit like OHHHHH WOE WOE IS ME ASHES AND DUST I HAVE RUINED MY LIFE when actually i just got an average mark instead of a very good one.)
unsure of what to do now. that was the first exam, the next one is the day after tomorrow. i didn't sleep last night so i'm wavering a bit; think i'll at least mail Prof. V about what happened before I pass out in my bubble bath. reckon i'll make tomorrow a hardcore revision day. gonna chill out tonight.
i'd type more about some other stuff i was gonna talk about but i'm whacked now and i keep hitting the wrong keys like a little old lady. gnight, all. carpe corporem.
erm, sorry about that last post there. it did let up after a while and i was able to sleep after trying the whole (Internet videos + hot bath with sleeping aid oils) thing suggested here. i'm pretty sure the cause is just stress since my first exam is tomorrow, the rest all happen in the same week and i am totally unprepared for any of them. i guess at least it gets them all out of the way quickly. after they're done i can start focusing on what to do about housing.
regarding "get to a psychiatrist rite nao!!!", i already have one and his office is shut at 2am no matter how crazy i am. i didn't want to call NHS 24 after the result i got last time, which was the on-duty staff insinuating that i was a crackhead, refusing to believe that i wasn't in treatment for heroin use, and repeatedly telling me they would not give me any morphine or methadone (i had not asked for any kind of drugs). i will let Dr. D know what went down when i see him next on the 24th.
i really appreciate the comments from people trying to help, too. it helps to know people are out there and they're not all judgmental dicks. there's not a whole lot of people i can call or whatnot when this kind of shit happens - my parents are too far away to do anything about it, so all it would do would be scare the crap out of them for no reason, and i didn't wanna wake either them or my one other friend Feoa up at that hour of the morning just to listen to Cracky McGee blabber on about shadows and imaginary singalong time.
gotta go "revise" now, but will be connected for the rest of tonight up through the morning if anyone writes back. carpe corporem
i'm a wee bit frightened right now. i'm hearing things that aren't there. sure i see things that aren't real from time to time because of the stupid habits i had when i was a teenager and the permanent, very mild damage i did to myself experimenting like that, but i don't usually hear anything and this is not a flashback, i know what those feel like and they've always been the same with the same cure. these noises are definitely not real: scrapings like granite on granite, whispering voices saying fucked-up shit, B speaking even though she is asleep in her room. she can't be talking because she's been in there for hours and already called J (her long-distance boyfriend) and her parents, these being the three people she speaks to almost every night and the only reasons she'd be on the phone in bed. i don't have auditory disturbance usually (as in it's not some symptom of BPD/EUD or chronic depression) - this is only the second or third time it's happened - but those exceptions are fucking freaking me out. there are also a few unreal things cropping up in my visual field.
they're shadows mostly, humanoid. no discernible features. i keep seeing one (that isn't my reflection) in the black background of this blog. there's also a trail effect, sort of like motion blur on a camera, when i move my head or eyes. unlike flashbacks none of this is alleviated by moving my hand through visual anomalies or plugging my ears until the sounds revert to tinnitus.
there are actual words, too, in the voices. that doesn't ever happen, this is the first time i have ever heard a voice actually speaking to me. usually it's like overhearing talk from far away. the other two times i've heard things, one caused by taking the wrong dose of sleeping pills because i forgot i'd taken the first one, the other by being a fucking moron and drinking more irish cream than i'm allowed by a factor of three or so - those times did involve the occasional song, but not this. for example, last time i thought Muad-Dib had GamerFM radio going on his headset whilst he was playing Heroes of Newerth, because i could hear a song that sounded like it might have been by the Birthday Massacre and B doesn't like that kind of music. there was no song. he didn't even have the actual game music activated. i couldn't make out the verses but the chorus went
everything is black
the queen is black
the dreams are back
and everything is all black
it repeated itself many times, scaring the crap out of me once i realised what it was. i thought it might have been an indicator that my gory, fucked-up nightmares were about to conquer Muad-Dib's superhero-like counteracting effect on them. nothing so far, thank fuck.
i just wish the voice component would give it a fucking rest. they're not schizoid instructions or warnings like someone truly affected by hallucinations might get; they don't give orders or appear consistently as a discrete set of "people" in my head. it's like one conglomerate of misplaced/inappropriately formatted thoughts that uses whatever human "voice" it feels like using in order to communicate its nonsense to me. they're saying things like "Hey" and "Don't think you should" and other vaguely contextual things about what i'm doing at any given point. and laughing every so often. but they're not compelling me to do anything, nor are they saying anything dangerous if i were forced to do what they say.
fuck. i just looked at the monitor on Muad-Dib's old machine that he lets me use, and lying in the background is an image of me lying down on my side, with my eyes open and glazed and my body not breathing or moving. it can't be a reflection because of the angle and because it is wearing makeup and no hat. i have my hat on, it doesn't. do any of you know what to do in this kind of situation? something i can take or do that might help? i realise how insane i am and i sound even worse here but this shit is not right and it's fucking creepy.
we got a letter a few days ago that said we're being evicted, again. the new outdoor second-floor beer balcony that the pub's owners (a company called Belhaven) have been wittering on about apparently requires the destruction of my home. B and i have been given two months to get the fuck out before they want to start construction, which means ball-wrecking our flat to make room for a little atrium and stairway where customers will come for about twenty days of the year max, to "enjoy" the "sun" of the City. we haven't even been here for the year we said we'd be.
Muad-Dib and i are gonna try and get a one-bedroom place to live in that we can share, and B is gonna find someplace to live by herself before she moves to Southampton (southwest England) in September. i have no idea where we're gonna live or what it's going to cost, but at least we can pool our resources. i'm still pretty stunned that he's cool with that kind of commitment.
the stupid thing is that this beer balcony is a shitty business decision. there's one right next to where they're gonna put it that gets all the sun in the courtyard, literally two metres away from their one. there's also an existing beer garden for this pub that's well liked, and a pub next door that has a proper roof terrace, twice the size of the balconies and heated with proper shelter for the rain and a 360-degree suntrap all year round. to boot, customers of our pub will have to climb several flights of stairs and go round to the back of the building to reach this balcony, unlike the other balcony. they will not be arsed to do it. it's not gonna make Belhaven any fucking money given the cost it will incur to build the damn thing. B wants to write to them and ask them to postpone construction but i doubt they'll agree.
i can't do fuck all about it yet, although at least we have a plan (exams are first priority right now). just thought i'd let you know that once again my landlords have turned out to be cunts.